Action for Carers Surrey
Enabling carers to have a voice and realise a life outside caring


NHS Continuing Care Support For Young Children additional funding


What is NHS Continuing Care Support for Children?

Where a child or young person under the age of 18 has needs arising from disability, accident or illness and these needs cannot be met by existing mainstream, universal or specialist services, they may be eligible for additional funding from the National Health Service.


How can I apply?

Any health or social care professional working with your child can make a referral to NHS Guildford and Waverley Clinical Commissioning Group (CCG) on your behalf. NHS Guildford and Waverley CCG host services for Children and Young People across the whole of Surrey.  Ask your lead professional or key worker to discuss the process with you.


What happens next?

The person making a referral will ask you to sign a form consenting to an assessment taking place and agreeing to share that information with other health and social care professionals and your child’s place of education if appropriate. They will have completed an initial assessment with you and your child called a Checklist and will send this to the commissioners with the referral.

The Checklist will give a very good indication to your child’s current health care needs and whether they should be referred for full consideration for Children and Young People’s NHS Continuing Healthcare. 

During the assessment you will have the opportunity to write down your own views if you should choose to do so.

If full consideration is recommended a member of the specialist paediatric nursing Children’s Continuing Healthcare Team will make an appointment to come and visit you and your child to complete a Triage Decision Support Tool Assessment (HNA).  During the assessment they will ensure that they take into account:

  • The needs expressed by your child or young person and you
  • The holistic needs of your child and your family as a whole including a parent carer assessment
  • Reports and assessments provided by the professionals involved in the care your child receives

What is a Triage Decision Support Tool?

This assessment is completed with you and your child, a children’s nurse and sometimes a social worker may be present. It is an opportunity to discuss your child’s needs and whether they are adequately being met within the services you are receiving.

The referring agency will have provided any recent assessments for the nurses to review and these, together with their assessment, will indicate whether your child may meet the criteria for NHS Continuing Healthcare funding.

The nurse will discuss with you and your child their needs across a variety of areas called domains. These are:

  1. Challenging Behaviour
  2. Communication
  3. Mobility
  4. Nutrition
  5. Continence
  6. Skin Tissue viability
  7. Breathing
  8. Drug Therapies & Medicines
  9. Psychological & Emotional Needs
  10. Seizures

You will be asked for any information you think is important for us to know about your child and your family and if you would like to write this down you will be given the opportunity to do so.

Your views will be valued and carefully documented and considered along with all the other evidence from the professionals caring for your child.


What happens after the assessment is completed?

The assessment will be sent to you so that you can agree that everything discussed has been included and that your own views have been incorporated. This is also an opportunity for you to add anything further that you didn’t talk about at the time. All of the information gathered, including your views, will be carefully considered by the healthcare and social care professionals involved and a recommendation will be made to the CCG.

The CCG will write to you letting you know whether your child meets the criteria for NHS Continuing Healthcare and what the next steps are. You will also be given a copy of the assessment.


How is a decision made?

The nurse involved in your assessment, and a social care worker if they have been involved, will, after considering all the information, make a recommendation to NHS Guildford and Waverley Clinical Commissioning Group (GWCCG). This will be further discussed at a Multi-Agency meeting of senior health and social care professionals. If your child meets the criteria for NHS Continuing Healthcare funding you will be informed in writing and contacted to discuss the care and frequency that is being suggested.

If your child does not meet the criteria you will be informed in writing and given an explanation why.


My child is at home. Will they have to go into a residential place to receive NHS Continuing Healthcare funding?

Your child, you and your family will be supported in your home environment for as long as this is possible.


If my child meets the criteria can I choose the package of care?

Any preferences you may have will be taken into consideration and all the options will be discussed with you. You will have as much choice as possible in the type of support and the frequency of that support.  GWCCG have a responsibility to ensure that your child’s assessed needs are being met in the best possible way and that identified clinical risks are taken into consideration. The Nursing Team will work with you to achieve this, however occasionally it may not be possible to meet your exact preferences.


Will NHS Continuing Care affect my child’s other benefits?

No, you will still be able to claim any other benefits that your child is entitled to if they are living at home. Benefits may be affected if your child goes to a residential placement.


Is the continuing healthcare funding permanent?

No. Your child’s eligibility for continuing care support is dependent on their health needs. Your child will have a regular review to make sure that the package of care being provided is adequately meeting their needs.


If your child’s needs improve and they are no longer eligible for NHS Continuing Care funding you will be involved in discussions and kept informed of future options.


If my child is not eligible for NHS Continuing Care Support can I appeal?

Yes. If you feel that the assessment has not been correctly carried out or if you have not been offered adequate respite care you can appeal by writing to NHS Guildford and Waverley. Details of how to do this will be included in the letter that is sent to you informing you of the decision.


If my child is not eligible for NHS Continuing Care Support will we lose current services?

No. The assessment is to decide whether your child is eligible for additional funding from children’s continuing care services. If they do not meet the criteria but continue to need mainstream, universal or specialist services these will not be withdrawn.



 Can I reapply for NHS Continuing Care?

If your child has been assessed as not meeting the criteria for NHS Continuing Care, and you feel that their condition has changed you can ask your lead professional or key worker to make another referral to the CCG.


Further information and copies of the Department of Health National Framework for Children and Young People’s Continuing Care, together with copies of the assessment documentation can be found on our website . If you do not have access to the internet you can request a copy of the assessment documentation, or request further information from:-


Children’s Complex Needs Commissioning

NHS Guildford and Waverley CCG

Dominion House

3rd Floor

Woodbridge Road




Telephone: 01483 405461




Reference: Department of Health National Framework for Children and Young People’s Continuing Care ( March 2010)